Monday, February 16, 2015

How do I say thank you enough?~!

How do I say thank you to the surgeon that has given me the opportunity to run albeit slow but I can run! How do I express my gratitude for giving me back something that was taken away from me 12 years ago? There are simply not enough words to say or show all that you have given me with your kindness, bed side manner, answering all my questions and showing me the amount of comfort and compassion that no other medical doctor ever has. You truly understand my needs and the wishes I have to become mobile, to play with my children, to enjoy the things I have missed out on for so long. I can walk without my legs rubbing together, I have a thigh gap, my clothing are fitting better. The smiles on the faces of my children when I chase them down the hall way is well worth the money spent, the pain I was enduring was brutal and it is now gone. From my family to yours Thank you and I love you so much for all that you do for me and for others inflicted with Lipedema!

Sunday, February 1, 2015

Insurance denial cosmetic what??!

So I am writing to tell share just how messed up our national insurance companies are! Not once but twice have they denied me the much needed surgeries to restore my mobility! I have had to write gut wrenching letters, ask my doctors and specialists to write on my behalf, and send in scantily clad photos to get them to understand that these surgeries are NOT COSMETIC and need to happen! My BCBS insurance has a clause in which they will not cover any surgery after the gastric bypass to correct extra skin, I understand there are rules to everything, however if a medical necessity is needed, IE chronic infections, neuroapthy in the area, loss of intimacy, horrible pain, and a panniculus (skin) apron full of toxic lipedema fat, then concessions must be made, I will continue to fight them until I cannot fight them any longer! Stay tuned for updates I am currently on appeal number 1 of 3!

2 weeks postop surgery 4 -final legs

It is bittersweet after all the pain I have endured for the last 12 years to finally be DONE with my legs! I don't know whether to be excited, ecstatic, or saddened that the pain is gone. I have learned to "deal" with it and the swelling that ensues for so long. For 20 years or more I have had larger legs, buttocks, hips, belly, and arms then most normal people. For the longest time I thought I was just fat and destined to be in a wheelchair at adult hood. Which I almost was at 23 years old when I shot up to almost 500 pounds within a couple years time. No one in West Virginia or Ohio could diagnose me properly, and without health insurance I was surely going to meet my demise sooner then later. I had already become house bound and depended on a cane to walk at 23 years old. I knew something had to be done and soon. I tried to get the gastric bypass but was denied because I did not have enough obesity related diseases, although I did have hypothyroid, diabetes, and high blood pressure. So thankful that I met and married my husband and was able to get the gastric bypass within 6 years of this, and it did save my life. It worked for me I feel that I am a work in progress, and that the bypass helped me overcome those co-morbidities!  Is it right for everyone that is a personal decision.!Pictured below is my legs just one week postop from my final leg surgery. I have several more surgeries to go on my buttocks,hips and whatever else we can find lipedema fat in!